in this case, is good news. We were discharged on Saturday around noon, and have been getting used to life at home since then. We have a heart monitor for Mara, and it is pretty easy to deal with, just not moving anywhere fast. Her medication is on a every six hour schedule, and Mara [...]
Well, today was a boring day - and that’s probably the most amazing thing that’s happened to us this far. Mara’s Dr. (pretty much the only one that I actually like) informed us that a boring day today and an uneventful night would equate to us takin’ Miss Mara home at or around 10 a.m. [...]
Do you ever notice that when someone that you love is in the hospital we tend to hang on every single word that the doctor or nurse or specialist spouts off? Man, I sure have noticed that about me lately. We are currently waiting for the cardiologist to tell us what he/she knows about Mara’s [...]
Well hell. Mara’s bili went up just a hair to 12.1, so the Dr. is going to keep her on the one last light. It breaks my morale to know that we can’t hold our daughter, when we had been so looking forward to it. The cardiologist is doing another echo cardiogram to check for [...]
Miss Mara’s bilirubin level was down to 11.4 this morning, so the doctors took away one more of her photo-therapy bili-lights. So she’s now down to just one light. She’s eating well (actually gaining weight) and is alert when she’s awake. Tomorrow, provided that we hit no more snags, the doctors will take away her [...]
I thought that I knew what “tired” was when I was pulling 24 hour shifts of duty in Iraq. Then we had Ben. Wow, was I mistaken. Now, we have Miss Mara, and each day seems to melt into the next. I honestly haven’t known what day of the week it’s [...]
Mara is doing extremely well - afterall, she is a fighter just like her mommy. Her billirubin is on a downward trend, which is a good sign of progress (provided that it stays on that trend). The doctors still can’t give us any idea of when we may be able to take her home, [...]
Being a parent, that is. We’re now in Topeka, waiting for Mara to come home with us. She had a high billirubin level, and was transferred to a Neonatal ICU for a procedure called an exchange transfusion. She made it through the procedure just fine and is doing well, but we are [...]
Born on May 20th at 3:54 p.m., she weighs 6lbs 13 ozs and is 20 inches long. She came into this world with a beautiful full head of black hair and a powerful set of lungs. The name Mara is Gaelic for thoughtful believer, which is derived from Mare (pronounced mar-A) which is [...]
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